Scottish Government Mental Health Standards – lived experience survey

07 March 2022

The Health and Social Care Alliance Scotland (the ALLIANCE) is seeking views from individuals with lived experience of mental health, their families and carers, and those with a vested interest in the development of mental health standards such as third sector organisations who support people with mental health conditions.

The research will consist of an online national survey with 21 questions and should take no more than 15 minutes to complete.

The findings will be gathered and from that, they will produce a report which will be submitted to the Scottish Government Mental Health and Well-being Quality Standards Working Group to support them in the development of Mental Health Standards for adult secondary care. This includes inpatient and community-based services.

If you have any questions regarding the research, you may contact Irene Oldfather, Director of
Strategic Partnerships and Engagement:

How can I get involved?

If anyone would like to participate in the online national survey they can do so through the following link:

You will be asked:
o Whether you or someone you care for has experienced mental ill-health
o Whether you or someone you care for has accessed mental health services
o Your experiences of mental health services
o Your age
o Your Health Board area
o Your gender identity
o Your ethnic group

The level of detail you provide is entirely up to you. There are options to ‘prefer not to say’ or to skip questions. You will not be asked for your name or contact details.

As the survey is online via smartsurvey, your IP address will be automatically collected but won’t be used to process the survey responses. Smartsurvey is GDPR compliant and their privacy policy can be found at

What happens with the information in the survey?

The survey findings will be analysed and collated and fed into a report on people’s lived experiences of mental health in relation to adult secondary care which will be completed in partnership with VOX Scotland and includes information from other engagement activities. This report will be submitted to the Scottish Government Mental Health and Wellbeing Quality Standards Group and published on their website and social media.

The ALLIANCE may use the survey findings in other relevant reports, publications, and on social media.

The survey findings will also be used to facilitate discussions around identified themes in planned focus groups relating to this engagement work and in partnership with VOX Scotland.

Published data will be shared worldwide and retained permanently.

The ALLIANCE will keep the survey raw data for two years from the publication of the ALLIANCE engagement report. It will be deleted from SmartSurvey after one year.

Your rights

You have the right to withdraw your consent at any time. However, it won’t be possible to remove information already included in statistical information that is no longer identifiable and will only be able to stop using any identifiable information in future reports and publications. Once published, the ALLIANCE will not be able to control how others use the information.

You also have the right to object to how your personal information is processed, the right to access, correct, sometimes delete, and restrict the personal and sensitive personal information we use.

Together with the right to receive your information in a machine-readable format for transfer to another organisation and not to be subject to a decision based solely on automated processing, including profiling.

Data protection

The ALLIANCE and its sub-contractors will not distribute or disclose your personal information to third parties unless they have your written permission or are required by law to do so. They comply with the Data Protection Act 2018 and GDPR 2018 when handling your personal information. If you have any concerns about how they use your personal information, contact DPO at: Alternatively, you have the right to complain to the ICO

For their full privacy policy, please visit their website:

By participating you are consenting to The Health and Social Care Alliance Scotland processing your personal and special category information for the above purposes, which is their legal basis for processing your personal information.

Share this page

Was this page helpful?

Is all the information correct?